{"id":7695,"date":"2017-10-25T15:00:00","date_gmt":"2017-10-25T15:00:00","guid":{"rendered":"https:\/\/www.visualfy.com\/estudio-del-sindrome-de-usher\/"},"modified":"2025-03-03T10:42:44","modified_gmt":"2025-03-03T10:42:44","slug":"estudio-del-sindrome-de-usher","status":"publish","type":"post","link":"https:\/\/www.visualfy.com\/es\/estudio-del-sindrome-de-usher\/","title":{"rendered":"Estudio del S\u00edndrome de Usher"},"content":{"rendered":"\n

El Instituto de Investigaci\u00f3n Sanitaria del Hospital Fundaci\u00f3n Jim\u00e9nez D\u00edaz de Madrid junto al <\/span><\/span>Instituto de Investigaci\u00f3n Sanitaria del Hospital Universitari i Polit\u00e8cnic La Fe<\/span><\/span><\/strong> de Valencia participan en un proyecto de estudio del S\u00edndrome de Usher.<\/span><\/span><\/p>\n\n\n\n

Se trata de un proyecto sobre el <\/span><\/span>S\u00edndrome de Usher<\/span><\/span><\/strong> tipo 1, es decir, de <\/span><\/span>personas<\/span><\/span><\/strong> que nacen <\/span><\/span>con sordera profunda y p\u00e9rdida de visi\u00f3n (RP)<\/span><\/span><\/strong> que aparece m\u00e1s tarde, sobre la adolescencia.<\/span><\/span><\/p>\n\n\n\n

Este proyecto est\u00e1 financiado por la <\/span><\/span>Uni\u00f3n Europea (H2020)<\/span><\/span><\/strong> con casi 6 millones de euros.<\/span><\/span><\/p>\n\n\n\n

El objetivo es investigar el uso de un medicamento hu\u00e9rfano, es decir un <\/span><\/span>medicamento que las empresas farmac\u00e9uticas<\/span><\/span><\/a> no venden por motivos financieros, ya que va dirigido a un grupo reducido de pacientes, como es el colectivo de personas con S\u00edndrome de Usher.<\/span><\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

El Instituto de Investigaci\u00f3n Sanitaria del Hospital Fundaci\u00f3n Jim\u00e9nez D\u00edaz de Madrid junto al Instituto de Investigaci\u00f3n Sanitaria del Hospital Universitari i Polit\u00e8cnic La Fe de Valencia participan en un proyecto de estudio del S\u00edndrome de Usher. Se trata de un proyecto sobre el S\u00edndrome de Usher tipo 1, es decir, de personas que nacen 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